The Clinical Building Blocks (Belgian version)

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CBB Validation process
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Introduction

Clinical Building Blocks (CBBs) are "detailed data specifications of medical concepts in a given context. Sometimes this concerns a single element (e.g. nationality), sometimes more than one element (e.g. medication), but these data specifications remain relatively small. The aim of the clinical building blocks is to specify precisely which terminology can be used without thereby implicitly choosing a given technical standard, reference model, or platform. This is because every care establishment does the latter for themselves. In this sense, therefore, the building blocks are 'agnostic' or 'neutral' (NFU, NICTIZ, 2015)."

The Clinical Building Blocks are an initiative of the 8 Dutch University Medical Centres (UMCs) to work together on the standardization of healthcare data. The reasons behind this initiative were various. The exchange of data between specialists and general hospitals becomes very much simpler when there exists a consensus as to what data definitions to use. In the area of research and indicators, it is also desirable and more efficient to record data (just once, if possible) as close as possible to the care process, and to extract this data, where possible, from the primary systems used by clinicians and other staff working in healthcare organisations.

Against this background, the Generic Data for Patient Transfers project was started in January 2012, as the first project within this collaboration. The aim of this project is to arrive at a nationally defined, generic data set that can be electronically exchanged and also re-used for research purposes. Besides the 8 UCMs, the Dutch national knowledge centre for IT and innovation in the healthcare sector (NICTIZ) also joined the project.

Background of the CBB-project in Belgium

Since 2013, the national “Action plan eHealth 2013-2018” prioritizes the consolidation and standardization of the scientific health care registries in Belgium. The department “healthdata.be” within the Scientific Institute of Public Health (WIV-ISP), funded by the National Institute for Health and Disability Insurance (INAMI-RIZIV), was created to coordinate this reform of the registries. The healthdata.be team started with a detailed survey with all known government sponsored registries. Information of more than 160 projects were published on the website healthstat.be. With this survey, more than 8000 variables requested by researches were inventoried. Analysis of these variables identified the need for a standard information model.

In the beginning of 2015, the healthdata.be team had several informal workshops with members of the NICTIZ and NFU project "Zorginformatiebouwstenen" (Clinical Building Blocks). Convinced that the CBB approach would be a good method to standardize the many variables that feed the many patient registries in Belgium, the healthdata.be team presented this CBB approach during the workshops (Q2 2015) for the actualization of the “Action plan eHealth 2013-2018”. Consequently, the Belgian adaptation of the CBBs was approved by the experts and the political steering committee and thus published in version 2.0 of the “Action plan eHealth 2013-2018” (Read more).

Scope of application

According to version 2.0 of the Roadmap eHealth 2013-2018, all recurrent scientific data collections in the field of health and health care should use the Belgian version of the Clinical Building Blocks. As of Q1 2016, all new projects sponsored by a federal or federated government should use the Belgian version of the Clinical Building Blocks for their data collection. By the end of 2017, all projects of the WIV-ISP and the RIZIV-INAMI should have implemented the Belgian version of the Clinical Building Blocks (List of projects).

Modification criteria and versions

During the start-up phase, the Dutch version of the Clinical Building Blocks need to be adapted for their use in the Belgian health care and research setting. For this adaptation, the "Belgian" modification criteria and versioning will align as much as possible with the modification criteria and versioning used in the Dutch NFU-NICTIZ project "Zorginformatiebouwstenen". Read more about the Modification criteria and versions.

Management process and roles

The management process and management roles within the Belgian adaptation project align as much as possible with the management process and roles used in the Dutch project "Zorginformatiebouwstenen". Read more about the Management process and the Management roles.

Clinical Building Blocks

The Table with the Clinical Building Blocks has 7 columns:

Columns Description Editable/Not editable
CCD/CCR Section This is the CCD[1]/CCR[2] section to which the Clinical Building Block belongs. Not editable
Clinical Building Block (En.) This is the English translation, commissioned by NICTIZ-NFU, of the original (Dutch) version of the NFU-NICTIZ Clinical Building Block. Each building block has the following prefixes: "be.en.hd.". The translation needs a review by Belgian (Clinical) experts in the field of health and health care. Not editable
Nl. (Be) This is the original version of the NFU-NICTIZ Clinical Building Block. Each building block has the following prefixes: "be.nl.hd.". Not editable
Fr. (Be) This is the French translation of the original (Dutch) version of the NFU-NICTIZ Clinical Building Block. Each building block has the following prefixes: "be.fr.hd.". The translation, commissioned by the healthdata.be team was made by a translation agency. This translation needs a review by French speaking Belgian (Clinical) experts in the field of health and health care. Not editable
Status This refers to the adaptation status of the Clinical Building Block. Not editable
Collaborative version This is the editable version used for collaborative review by external reviewers and the Core Group Clinical Building Blocks. Starting point is the English translation of the Clinical Building Block. Each building block has the following prefixes: "be.en.hd." and following suffix ".review". When the review and the modifications of the English collaborative version of the Clinical Building Block are completed, this version will be published as "be.en.hd.". Only after acceptance of the English version, the translations into Dutch and French can be completed and validated. Editable
Discussion pages This is the page used for discussions during the collaborative review by external reviewers and the Core Group Clinical Building Blocks. Editable

Clinical Building Blocks: Core set

CCD/CCR Section Clinical Building Block (En.) Nl. (Be) Fr. (Be) Status Collaborative Version Discussion Pages
Vital Signs be.en.hd.Respiration be.nl.hd.Ademhaling be.fr.hd.Respiration Under review link link
Social History be.en.hd.AlcoholUse be.nl.hd.AlcoholGebruik be.fr.hd.ConsommationDAlcool Under review link link
Alerts be.en.hd.Alert be.nl.hd.Alert be.fr.hd.Alerte Under review link link
Alerts be.en.hd.AllergyIntolerance be.nl.hd.AllergieIntolerantie be.fr.hd.AllergieIntolérance Under review link link
Functional Status be.en.hd.BarthelIndex be.nl.hd.BarthelIndex be.fr.hd.EchelleDeBarthel Under review link link
Advance Directive be.en.hd.TreatmentInstruction be.nl.hd.BehandelAanwijzing be.fr.hd.InstructionDeTraitement Under review link link
Payers be.en.hd.Payer be.nl.hd.Betaler be.fr.hd.Payeur Under review link link
Vital Signs be.en.hd.BloodPressure be.nl.hd.Bloeddruk be.fr.hd.TensionArtérielle Under review link link
Social History be.en.hd.MaritalStatus be.nl.hd.BurgerlijkeStaat be.fr.hd.EtatCivil Under review link link
Support be.en.hd.Contactperson be.nl.hd.Contactpersoon be.fr.hd.PersonneDeContact Under review link link
Encounters be.en.hd.Contact be.nl.hd.Contact be.fr.hd.Contact Under review link link
Social History be.en.hd.DrugUse be.nl.hd.DrugsGebruik be.fr.hd.ConsommationDeDrogue Under review link link
Family History be.en.hd.FamilyHistory be.nl.hd.Familieanamnese be.fr.hd.AnamnèseFamiliale Under review link link
Functional Status be.en.hd.FunctionalOrMentalStatus be.nl.hd.FunctioneleOfMentaleStatus be.fr.hd.StatutFonctionnelOuMental Under review link link
Vital Signs be.en.hd.GlasgowComaScale be.nl.hd.GlasgowComaScale be.fr.hd.ScoreDeGlasgow Under review link link
Vital Signs be.en.hd.HeartFrequency be.nl.hd.Hartfrequentie be.fr.hd.FréquenceCardiaque Under review link link
Social History be.en.hd.LifeStance be.nl.hd.Levensovertuiging be.fr.hd.ConvictionsIdéologiques Under review link link
Vital Signs be.en.hd.BodyWeight be.nl.hd.Lichaamsgewicht be.fr.hd.PoidsCorporel Under review link link
Vital Signs be.en.hd.BodyHeight be.nl.hd.Lichaamslengte be.fr.hd.Taille Under review link link
Vital Signs be.en.hd.BodyTemperature be.nl.hd.Lichaamstemperatuur be.fr.hd.TempératureCorporelle Under review link link
Medications be.en.hd.MedicationUse be.nl.hd.MedicatieGebruik be.fr.hd.UtilisationDeMédication Under review link link
Medications be.en.hd.MedicationAdministration be.nl.hd.MedicatieToediening be.fr.hd.AdministrationDeMédication Under review link link
Medications be.en.hd.MedicationSupply be.nl.hd.MedicatieVerstrekking be.fr.hd.DélivranceDeMédication Under review link link
Medications be.en.hd.MedicationPrescription be.nl.hd.MedicatieVoorschrift be.fr.hd.PrescriptionDeMédication Under review link link
Medical Equipment be.en.hd.MedicalAid be.nl.hd.MedischHulpmiddel be.fr.hd.DispositifMédical Under review link link
Social History be.en.hd.Nationality be.nl.hd.Nationaliteit be.fr.hd.Nationalité Under review link link
Vital Signs be.en.hd.O2Saturation be.nl.hd.O2Saturatie be.fr.hd.SaturationEnO2 Under review link link
Social History be.en.hd.Education be.nl.hd.Opleiding be.fr.hd.Formation Under review link link
Problems be.en.hd.TransferConcern be.nl.hd.OverdrachtConcern be.fr.hd.TransfertPointDeVigilance Under review link link
Plan of Care be.en.hd.TransferPlannedCareActivity be.nl.hd.OverdrachtGeplandeZorgActiviteit be.fr.hd.TransfertActivitéDeSoinsProgrammée Under review link link
Results be.en.hd.TransferLaboratoryResult be.nl.hd.OverdrachtLaboratoriumUitslag be.fr.hd.TransfertRésultatDeLaboratoire Under review link link
Results be.en.hd.TransferTextResult be.nl.hd.OverdrachtTekstUitslag be.fr.hd.TransfertRésultatEnTexte Under review link link
Procedures be.en.hd.TransferProcedure be.nl.hd.OverdrachtVerrichting be.fr.hd.TransfertProcédure Under review link link
Header be.en.hd.Patient be.nl.hd.Patient be.fr.hd.Patient Under review link link
Vital Signs be.en.hd.PainScore be.nl.hd.Pijnscore be.fr.hd.ScoreDeDouleur Under review link link
Vital Signs be.en.hd.PulseFrequency be.nl.hd.Polsfrequentie be.fr.hd.FréquenceDuPouls Under review link link
Social History be.en.hd.TobaccoUse be.nl.hd.TabakGebruik be.fr.hd.Tabagisme Under review link link
Immunisations be.en.hd.Vaccination be.nl.hd.Vaccinatie be.fr.hd.Vaccination Under review link link
N/A be.en.hd.LivingWill be.nl.hd.Wilsverklaring be.fr.hd.DéclarationDeVolonté Under review link link
Social History be.en.hd.LivingSituation be.nl.hd.Woonsituatie be.fr.hd.Domicile Under review link link
Header be.en.hd.HealthcareProvider be.nl.hd.Zorgaanbieder be.fr.hd.OrganisationDeSoins Under review link link
Header be.en.hd.CareGiver be.nl.hd.Zorgverlener be.fr.hd.PrestataireDeSoins Under review link link

Clinical Building Blocks: Extension

Section Clinical Building Block (En.) Nl. (Be) Fr. (Be) Status Collaborative Version Discussion Pages
... be.en.hd.GeneralMeasurement be.nl.hd.AlgemeneMeting be.fr.hd.MesureGénérale Under review tbd tbd
... be.en.hd.TreatmentGoal be.nl.hd.Behandeldoel be.fr.hd.ObjectifDeTraitement Under review tbd tbd
... be.en.hd.BladderFunction be.nl.hd.Blaasfunctie be.fr.hd.FonctionVésicale Under review tbd tbd
... be.en.hd.BurnInjury be.nl.hd.Brandwond be.fr.hd.Brûlure Under review tbd tbd
... be.en.hd.CommunicationSkills be.nl.hd.Communicatievaardigheden be.fr.hd.CompétencesEnCommunication Under review tbd tbd
... be.en.hd.BowelFunction be.nl.hd.Darmfunctie be.fr.hd.FonctionIntestinale Under review tbd tbd
... be.en.hd.DecubitusWound be.nl.hd.DecubitusWond be.fr.hd.EscarresDeDécubitus Under review tbd tbd
... be.en.hd.HearingFunction be.nl.hd.FunctieHoren be.fr.hd.FonctionAuditive Under review tbd tbd
... be.en.hd.VisualFunction be.nl.hd.FunctieZien be.fr.hd.FonctionVisuelle Under review tbd tbd
... be.en.hd.SensoryPerceptionFunction be.nl.hd.FunctieZintuiglijkeWaarneming be.fr.hd.FonctionPerceptionSensorielle Under review tbd tbd
... be.en.hd.FamilySituation be.nl.hd.Gezinssituatie be.fr.hd.SituationFamiliale Under review tbd tbd
... be.en.hd.AidWithMedication be.nl.hd.HulpBijMedicatie be.fr.hd.AideAvecMédicaments Under review tbd tbd
... be.en.hd.AidOfOthers be.nl.hd.HulpVanAnderen be.fr.hd.AideDesAutres Under review tbd tbd
... be.en.hd.Infusion be.nl.hd.Infuus be.fr.hd.Infusion Under review tbd tbd
... be.en.hd.MenstrualCycle be.nl.hd.Menstruatiecyclus be.fr.hd.CycleMenstruel Under review tbd tbd
... be.en.hd.Mobility be.nl.hd.Mobiliteit be.fr.hd.Mobilité Under review tbd tbd
... be.en.hd.MUSTScore be.nl.hd.MUSTScore be.fr.hd.MarqueMUST Under review tbd tbd
... be.en.hd.Malnutrition be.nl.hd.Ondervoeding be.fr.hd.Malnutrition Under review tbd tbd
... be.en.hd.TransferFallRisk be.nl.hd.OverdrachtValrisico be.fr.hd.TransfertRisqueDeChute Under review tbd tbd
... be.en.hd.ParticipationInSociety be.nl.hd.ParticipatieInMaatschappij be.fr.hd.ParticipationALaSociété Under review tbd tbd
... be.en.hd.PainPerception be.nl.hd.PijnBeleving be.fr.hd.PerceptionDeDouleur Under review tbd tbd
... be.en.hd.SleepFunction be.nl.hd.Slaapfunctie be.fr.hd.FonctionDeSommeil Under review tbd tbd
... be.en.hd.ProbeSystem be.nl.hd.SondeSysteem be.fr.hd.SystèmeDeSonde Under review tbd tbd
... be.en.hd.SpecificMentalFunctions be.nl.hd.SpecifiekeMentaleFuncties be.fr.hd.FonctionsMentalesSpécifiques Under review tbd tbd
... be.en.hd.Stoma be.nl.hd.Stoma be.fr.hd.Stomate Under review tbd tbd
... be.en.hd.LanguageSkills be.nl.hd.Taalvaardigheid be.fr.hd.CompétencesLinguistiques Under review tbd tbd
... be.en.hd.ResultOfCare be.nl.hd.UitkomstVanZorg be.fr.hd.RésultatsDesSoins Under review tbd tbd
... be.en.hd.AbilityToDrink be.nl.hd.VermogenTotDrinken be.fr.hd.CapacitéABoire Under review tbd tbd
... be.en.hd.AbilityToEat be.nl.hd.VermogenTotEten be.fr.hd.CapacitéAManger Under review tbd tbd
... be.en.hd.AbilityForHairCare be.nl.hd.VermogenTotHaarverzorging be.fr.hd.CapacitéAuxSoinsDeCheveux Under review tbd tbd
... be.en.hd.AbilityForOralCare be.nl.hd.VermogenTotMondverzorging be.fr.hd.CapacitéAuxSoinsBuccaux Under review tbd tbd
... be.en.hd.AbilityToToileting be.nl.hd.VermogenTotToiletgang be.fr.hd.CapacitéAAllerALaToilette Under review tbd tbd
... be.en.hd.AbilityToDress be.nl.hd.VermogenTotZichKleden be.fr.hd.CapacitéASeVêtir Under review tbd tbd
... be.en.hd.NursingIntervention be.nl.hd.VerpleegkundigeInterventie be.fr.hd.InterventionInfirmière Under review tbd tbd
... be.en.hd.NutritionAdvice be.nl.hd.Voedingsadvies be.fr.hd.ConseilsDeNutrition Under review tbd tbd
... be.en.hd.RestrictiveMeasuresMentalHealth be.nl.hd.VrijheidsbeperkendeMaatregelenGGZ be.fr.hd.MesuresRestrictivesSantéMentale Under review tbd tbd
... be.en.hd.RestrictiveMeasures be.nl.hd.VrijheidsbeperkendeMaatregelen be.fr.hd.MesuresRestrictives Under review tbd tbd
... be.en.hd.Wound be.nl.hd.Wond be.fr.hd.Plaie Under review tbd tbd
... be.en.hd.DiseasePerception be.nl.hd.Ziektebeleving be.fr.hd.PerceptionDeMaladie Under review tbd tbd
... be.en.hd.Pregnancy be.nl.hd.Zwangerschap be.fr.hd.Grossesse Under review tbd tbd

References

  • Fred Smeele, members of the core group on Generic Data for Patient Transfers (01-03-2013) Accompanying document. Products. Generic Data for Patient Transfers, Version: 1.00, NICTIZ & NFU, The Hague, The Netherlands.
  • Fred Smeele, leden kerngroep Registratie aan de Bron (20-03-2015) Begeleidend document Zorginformatiebouwstenen Registratie aan de Bron (Producten Generieke Overdrachtsgegevens en Verpleegkundige uitbreiding), Versie: 2.00, The Hague, The Netherlands.
  • Interministrial Conference Public Health (14.10.2015) Plan eHealth 2013-2018: v2.0, Brussels, Belgium ([3] (Nl.) [4] (Fr.))